Seizures

This is where we were on this same day last year (4/13)

Cardon's Children Hospital

 As sad as these pictures are, I just can't help but smile at how cute this little guy was!! He was such a trooper.

I remember the phone call.

I was interviewing a prospective employee (now an awesome friend and great support!) when my husband told me the news, "Hayden had a seizure." after only having him  in my arms four short months, it still felt like my whole world came crashing down. My initial thought was to call my good friend Jennifer--she would know what to do and where to go. Jennifer had been there before with her own child at a similar age and under similar circumstances. I am not sure what I would have done without the support of Jennifer.


Four months old? How does this happen?


A large part of me was hoping the shots he had just two days before had raised his body temperature causing a febrile seizure. Not that I would want to wish any seizure on my child, but if I had to chose, I would want one that atleast came with an explanation. I dreaded the thought of my sweet baby boy having to go through life with hardships.

The rest...well that is sort of a blur.

Initially I remember the Emergency room doctor saying "he looks just like a normal baby. You know, babies do funny things."  His reaction puzzled me.

Funny things?
I am not sure how he found any of this funny but his nonchalant demeanor ended quickly when Hayden had another seizure in the emergency room. My reaction was not something I am proud of: I ran, I screamed, and I cried. Through my tears I remember the doctor and nursing staff standing around the bed just staring at him. The doctor shook his head "this is not normal, this is not okay. Something is not right.". All I could get out was "do something with my baby, don't just stand there"

My heart is heavy thinking about it.

Anyway, here's how we got started with our adventure with epilepsy....